Dirty Shoes

Join us with our journey through Autism Spectrum Disorder

February 20, 2013 February 20, 2013

Filed under: The Usual — Chobie @ 9:55 pm
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I have failed you bloggity! I have not written in so long and we’ve missed out on all the fun holiday stuff. I hope you won’t be too mad. Seems like every time I’d get started writing, something would interfere and I’d have to stop. Orrrr I was just really, really tired. Anyway, excuses aside. Selena has been doing pretty well considering the fact that her entire routine has been turned upside down. No school for 2 weeks! What is that about?! I understand teachers and holidays and all that, but I just wish there was something I could enroll her in for those 2 weeks so that we can keep on track with everything. There probably is and I just haven’t looked hard enough. Day after Christmas, Selena was upset that she wasn’t going to school. Every morning she is asking if she’s going to school, even though every night before I am telling her where she will be going. I should soak this up while I can, because once she hits 15/16 it’s all over! Heh.

No new nail picking and Selena is doing great in that aspect. She has started slapping and hitting herself now and doesn’t seem to know how to not drag her feet. Gaaah!! We are buying new shoes just about every month.

And that from above was from Jan. 3rd. Sigh. I always think about writing and just never get to do it anymore. Gymnastics, Cheer, Girl Scouts and something else… Planning our wedding!!! EEEEE!!! My darling finally proposed to me and Selena is so excited to have the same last name as everyone. Most days. Heh. She is too cute and talks about it often, but if you catch her on a bad day (like yesterday) she’ll cover her hands over her ears, keep her back towards you and tell you that you are the worst person in the world. Needless to say, things have been a bit busy. Always busy. Ask anyone we know and they’ll tell you that we never stand still long enough for our shadow to move. All that set aside, I will not bother to go too in depth with everything that I’ve missed telling you about because, that is just too much.

We started a garden! Selena loves working in it! She loves it so much that Papa & Grammy got her a garden set (which Rob and myself love too). We have had some ‘harvests’ and it’s so neat to see her get so excited about picking pea pods and planting her own seedlings. I have a bunch of sweet peppers germinated so she’ll need to transfer them over to some soil and that will be so awesome for her.

Great Christmas, she got everything she wanted, except for the dancing robot. I could not find one anywhere! She enjoyed the Mrs. Potts tea set and tea cart. I swear when I opened up the box to assemble it, glitter encased our entire living room. Christmas went well, we were all spoiled by what Santa and our loved ones gave to us;  she did wonderful at my brother’s house, I think that’s mostly because Emma and Hope were with us. Now that the Christmas honey moon is over and there were a few weeks off of school, the fun can begin. She was excited to be off school, then crying, then happy again and finally every day I would hear the same thing, “School today Mommy?” Every night before she went to sleep we’d count down the days and remind her that there was no school. Ugh. How happy she was to be back in school!!! I’m sure that will wear off soon enough. The new year came and left, Selena understood the months changing, but not the year. Just keep explaining over and over and over again, knowing that one day she’ll understand.

January became the month of change. An instant cut of our insurance got us scrambling for something, anything to help cover the $1,200 a month cost of medication. No more hippotherapy, which didn’t help nor hinder her in anyway; I’d rather have someone have the slot who can substantially benefit from the hippotherapy.  Applied for KidCare and SSI, which I have to call and make an appointment for the SSI which I can never seem to find the time for, which has to be done. It’s been crazy. Selena has been doing great in school, when she wants to and is scoring high on the Florida practice exams.

Girl Scouts has been going great, we are quite a few petals in; have done quite a few activities and now it’s cookie time! Selena is super stoked about this because she is a social butterfly. She does not have the traditional social wallflower behavior at all. She will go up to anyone, anywhere and tell them her name, that she’s a girl, that her name is Selena, that we are her parents and what our names are….it goes on and on! They are instantly her best friend and she will hunt them down and follow them everywhere. It is so bad that when Emma and Hope are with us, she will have nothing to do with them and tell us that!! I try to tell her that it hurts their feelings and that it isn’t a nice thing to say but frankly, she doesn’t care. Tunnel vision is in full swing and it doesn’t matter who is around her or who wants to talk to her. Get her on a playground and say good-bye to Selena because she isn’t on this planet anymore.

Injuries and behaviors. Oh here we are, time for the fun part of our little one sided chat. She has some interesting ways of hurting herself as of late. Slapping and hitting herself. At Girl Scouts she did it when she couldn’t get something right. At home when we ask her to do something she doesn’t want to do or agree with. I’m not sure what brings it on yet, if she’s doing it because she’s angry or if it’s because she is looking for some nerve stimulation or if she’s just being stubborn. Either way, she caught some crooked looks from the other girls and Rob had to remove her from the meeting to calm down (we could still hear her screaming though lol). Another injury which is peculiar. She is biting on her lips and breaking the skin open. I think she’s been doing it for a while but now she’s doing it worse – or she finally got caught. This one, I have no idea why she’s doing it and I have no idea how to stop her. Granted it doesn’t seem like she’s eating her lips off or anything, but if it’s something she does to cope with feelings, I want to find a way to get through to her so she stops doing it. She doesn’t seem to be dragging her toes as much as she was. I’m not sure if they are catching it or what’s going on, but her shoes don’t seem to take such a beating. Watch, I’ll say that and go home today to find her shoes all messed up!! Rolling her eyes. Does your child do this? When we are eating she rolls her eyes into the back of her head and if you didn’t know Selena, you’d think she was going to start spinning her head around vomiting everywhere. We ask her about it and she just blows it off, unknowing of what she is doing. She is always ‘coloring’ things with her finger. You know how you pretend to squish peoples heads? Squint and squish-squish. Well, she does that but like she’s coloring with her finger or hand sometimes. I guess our house needs a little bit more color. Irritating if she’s doing that while we are trying to talk to her. Routines, ugh. Don’t F with the routine. That’s well known though, so no surprise there. That’s it for now, I’m sure that I will think of more right after I hit the Publish button.

Now to end on a good note – since I am about to punch out and I don’t know when I’ll be back (no point in beating around the bush).

Selena is about to turn 7 and I am thrilled that she has come as far as she has! I cannot express enough how happy this makes me. We are constantly working with her and always trying to take our time and show her everything. Talk to her about everything and just be there for her. Times get rough, patience gets thin and she likes to tell us just what she thinks of us (which can be really mean) but all in all, she is my beautiful little girl who is taking her time with growing in this big world. I don’t think I could imagine it any other way.

I’ll be back as soon as I can. Thanks for your patience.

J

 

 

 

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